Were you aware?

300,000

People in Ireland are living with a rare disease, impacting a quarter of all families⁶

Three quarters of rare diseases
are genetic in origin⁷

Over 6,000 diseases
are classified as rare⁸

Children account for
50% of all people living with a rare disease⁹

11.8% of children living with a rare disease will die
before the age of 18¹⁰

Nearly 60% of all
children who die have
a rare disease¹¹

Children living with a rare disease spend 25 times
more time in hospital¹⁰

49% of people living with a rare disease receive inappropriate care, treatment or surgery due to misdiagnosis¹¹

62% of people living with a rare disease have delayed access to care, treatment or surgery due to misdiagnosis¹¹

66% of people living with a rare disease report symptoms that are wrongly attributed to another disease¹¹

Campaign Partners

This initiative is brought to you by Rare Diseases Ireland
and Roche Products (Ireland) Ltd

Rare Diseases Ireland

Carmichael House, North Brunswick Street,
Dublin 7, D07 RHA8, Ireland

Roche Products (Ireland) Ltd

3004 Lake Drive
Citywest Business Campus, Naas Road
www.roche.ie

M-IE-00001774, Date of Preparation: March 2024 | Privacy Notice | Cookie Notice | Terms & Conditions